NHS Choices Advice, tips and tools to help you make the best choices about your health and wellbeing. Prosopagnosia was added to NHS Choices in 2014.
Oliver Sacks Foundation The Oliver Sacks Foundation is a nonprofit organization devoted to increasing understanding of the human brain and mind through the power of narrative nonfiction and case histories. It develops the work of Oliver Sacks, a British Neurologist who had first-hand experience of living with prosopagnosia.
Neurological Alliance The Neurological Alliance is a coalition of more than 90 UK organisations working together to improve the treatment, care and support available for people whose lives are affected by a wide range of different neurological conditions.
Acquired Prosopagnosia
Where face blindness is the result of a trauma (through injury or illness) to the brain, there are specialist, national charities which may be able to provide information, insight and support, via a helpline or contact page. These include:
Research into Diagnosing and Living with Prosopagnosia
Though access to the research papers themselves may sometimes be limited, some of the findings into the impact of living with prosopagnosia have been summarised for the general public.
- Hallmark Symptoms (children & adults) – Bournemouth University
- Prosopagnosia in Children – Bournemouth University
- The Twenty-item prosopagnosia index – a group of UK researchers have developed the P120 questionnaire to self-assess the presence and severity of prosopagnosia.
- Psychosocial consequences of developmental prosopagnosia: A problem of recognition – a research paper by researchers in the UK and the USA.
- A Room Full of Strangers – a research paper exploring the psychosocial impact of prosopagnosia in childhood.
- Coping Strategies for Prosopagnosia – a downloadable PDF from Bournemouth University for adults with prosopagnosia.
